parenting

Honoring Mikaela and Drew and Owen, and all the nameless…

This week, we lost another precious butterfly in our network.  Beautiful Mikaela Lynch wandered away from her family in a moment, and was found days later, dead.  I would love to say that in a nicer way, but there is a part of me so bothered and troubled, that I feel the need to say it plain and honest.

Because no one else is.

When I say no one else, I am referring to the media.  I an honored today to join an outpouring of support from other bloggers to embrace Mikaela’s surviving family with love.  Because they are in our hearts.  We mourn with them, alongside them. It could’ve been any of us.  It could have been me or you, waiting for news, hoping hoping hoping.

The thing about Special Needs parents is that we are quick to support.  We are a tribe, holding one another up in times of need.  Because we know there are those who will always be quick to tear us down on the slightest provocation.  All of us wish we were closer, to help this mom and family out, whether it would be by doing a load of laundry or two, bringing the proverbial casserole or just being there with a listening ear and a warm cuppa.  Our support in cases like this is unwavering.  Whether we are virtual neighbors or right next door.

What is disturbing me, beyond the sensationalist blame game that always seems to pop up around situations like this, is the real lack of media coverage.  When a typical lil white girl goes missing, FB is plastered with it, it’s all over the news, we see her face again and again and again.

I mostly saw Mikaela’s face on FB pages of other special needs families.  When I was talking to our ABA therapist the day she was found, our therapist hadn’t even heard the story.  And we live right here in CA.  While not local, it SHOULD have been more present in our local news, IMO.

We need to change our ideals, y’all.  We need to stop following the hype of sensationalist nonsense like someone’s pregnant feet and start paying attention to the things that matter.  We all need our hearts to stop and our love and prayers to fill the universe when one of our lil butterflies goes missing, special needs or typical.  And we need to take seriously the dangers that surround the wandering issues of Autistic children. Special Needs amber alerts, Big Red Safety tool boxes, GPS tracking systems, tools for law enforcement–ALL OF IT.  We need parents of typical kids to stop ignoring this because it doesn’t apply to their kids–BECAUSE IT DOES.  If we cannot protect those that need our help the most, how can we help those next in line?  We cannot ignore this problem away.

Please take a moment to send love–pure and simple–from your heart to the family of Mikaela Lynch.  And then take a moment to send out more love to the family of Drew Howell, and Owen Black, both discovered just this weekend, having wandered away only to be found dead, both in bodies of water.  This should be evidence enough that this is a real and legitimate problem in our community, and we need the communities around us to take it as seriously as we do.  Please.  I am begging you.  Pay more attention to the news that matters and not what some knucklehead has to say about nothing that matters.

And then hug your kids.  And go over safety issues with them.  Again.  Even if they roll their eyes at you.  And then talk to your neighbors.  Community building.  We needs it.

Rest in peace you sweet butterflies.

Categories: Autism, parenting | 6 Comments

What We See…

Yesterday, as we left pick-up, one of Benji’s classmates came up to him and insisted on giving him a hug.  It was a sweet little boy who had informed me maybe  a week earlier when I had visited the class that he had declared himself Benji’s BFF, with all the duties that entails.  In fact a few children came up, asking if I was Benji’s mom and declaring their allegiance.  Or at least to report to me that Benji’s behavior color was still in good standing at the end of the day.

It was sweet and comforting. The one thing that would give me the sad was watching him interact on the playground in the morning at drop off.  He has found his routine of putting his backpack and lunchbox in their respective gulag, but then he would falter a little.  I watch him watch the other little boys and girls running about in no doubt a rousing game of zombie tag, and I can see it in his little face:  the excitement.  He wants to join in. He wants to feel the wind in his hair and the triumph of zombie defeat.

He just doesn’t know how.  And if breaks my heart every. damn. time.

They work on it in speech.  They work on it in ABA.  How to be a friend.  How to have a discussion.  How to share what may be the awesomest toy in the history of toymaking awesomeness.  And he kicks ASS in these skills.  With adults.  He can be friends with an adult in a city minute.

But kids are so damn exciting!

His eyes light up and he smiles and his little fingers come out with their “love guns” where he will poke you with “love”–he even says “love, love, love!” when he does it–and he starts to dance about in joy.  Gods DAMN he loves kids!

And everything he learned in the five million gajillion sessions of [insert therapy here] goes flying out the window, and he will poke and push and jump on someone–usually the ONE kid who does NOT want to rough house and has a habit of telling any and ALL adults in the vicinity about his victimization, and Benji is scolded and told he was wrong.

And it just breaks my fucking heart.

He cannot explain his excitement.  He cannot explain his fervor.  And he is new to every adult there.  He is the only kid with autism mainstreamed into kindergarten at the moment, and sometimes I feel like it’s a giant neon sign saying “watch out for this guy!  he’s got issues!”

What sets him apart isn’t the rough-housing or the excitement.  Every single kid in all 4 of the classes experiences this.  He just can’t explain himself, and doesn’t always understand the reprimand.  It’s communication that sets him apart.  Otherwise, he is like any other kid waiting to go down the slide, eating his snack at the picnic table,  and running around with the joy that modified freedom can bring.

And the other kids see that.  well, except for tattle-tale Irving, but he’s prolly got his issues too.  They see someone who doesn’t always answer their questions, or know how to “dialogue” during pretend play (but he’s getting better!) but for the most part knows the basics of tag and rasslin, and is usually playing with something pretty cool.  He’s a little screamy when he doesn’t get his way–but at 5 & 6, who isn’t?  Other than Irving.

But it isn’t the kids who send the notes home, and it isn’t the kids who have “concerns” and it isn’t the kids who see every.single.difference and comment upon it.  It isn’t the kids who switch on the neon sign every morning.

That little hug after school reminded me of that yesterday.  In the end, that hug meant more than a million hours of compliance.  And I’m grateful for it.

Categories: Autism, parenting | 7 Comments

VS

You know what I think?

Yeah, I don’t know what I fucking think.

I’ve stayed away from the blogging scene recently because of that.  I’ve got nothing, except a full schedule, and I always don’t make time for writing.

And some would look at that and say I am not a true writer.  That were I truly dedicated to my craft, I would wake up wanting–no, NEEDING to write, and nothing would get in my way of doing it–not the dishes, not the mortgage, not the laundry…

And I haven’t been sewing much lately.  My schedule, again is full, and I’ve found those moments to myself have been just that–and I’ve curled up with a book and a cuppa and haven’t ventured much into my studio.

And some would say I’m not really committed to my art. That if crafting were that important to me, I would be COMPELLED to do it. It would take up every moment I have,  because that’s how they define inspiration.

I haven’t been eating well lately.  I have a tendency to reach for what is easy, and what tastes good, and what fills that internal comfort meter of the fat/sugar ratio of delight.  Because pastries were meant to be consumed.  And “beer is proof that God loves us.”  (Ben Franklin)

And some would say I am not serious about getting healthy and losing these extra pounds.  That if I were serious, I would only eat this or that, and I would have will power, and I would exercise and nothing would get in my way.

My face to face time with friends has been limited lately.  Because sometimes I find it exhausting.  And I prefer a moment to myself with the new season of Downton Abbey and a warm beverage.

And some would say I am not a good friend.  Because I don’t go out of my way to make the time to go on this lunch date and join that book club and share that recipe and drink that cocktail.  If I really wanted girlfriends, I would make the effort.

My parenting has been sorta off track lately.  SO much so that I have to make lists of the things I’m supposed to be doing because I forget that he has to brush his teeth, or that we should go to the park, or that there is homework in his backpack.

And some would say I’m not being a good parent.  Because they define parenting by some sort of construct they developed themselves based on a ratio of their own parents’ actions in relation to the way THEY wanted to be raised, with a healthy dose of whatever it is they read on the interwebs.  And that if I were really serious about being a good parent, I would read this and do that and feed him that and read him that.

I’m not one for New Year’s resolutions.  I always figure if I need to make a change, I do.  I don’t need a prescribed date to do it. 

And, I suppose, some would say I’m lazy and missing an opportunity to better myself.

But, funny thing is, there’s a resolution I just realized I was so far keeping this year:  oddly enough, I’m not listening to what THEY say anymore.  As far as I’m concerned, THEY can go fuck themselves, because they obviously don’t know me.  THEY seem to make a habit of bullying others because that person doesn’t fit within their social construct.  THEY shout loud for all to hear that THEY are the ones with the answers, and woe to those who disagree.  And they quote holy books, or scientific studies, or Facebook posts, and claim to have the answers. FOR ME. Having never sat on my saggy couch or eaten my banana bread.  THEY are no better than the invisible army they rail against.  Just loud and obnoxious and insulting bullies.  And I’m tired of them having a voice.  I really am.

Now, if you’ll excuse me, I have some laundry to do, and I need to brainstorm a way to get my kid to WANT to line up at the morning bell, and I’ve got some knitting to finish, and I’m a little hungry since I haven’t eaten brekkies yet.  You know–LIFE.  The thing we end up doing when we stop listening to THEM.

Categories: parenting, Snark | 5 Comments

Including Inclusion

The other day, we’re at the park with my mom, and Ben is playing, and I lose sight of him.  I figure he’s just on the other side of the jungle gym, and I’m just about to get up, to tell him not to climb on the rock wall, when his head pops up–above the rock wall.  Climbed up that fucker like a lil monkey.  And then proceeded to slide down the slide and DO IT AGAIN.  And I say to my mom, “well, I guess he can do THAT now.”  (see?  I’m not QUITE the helicopter mom I make myself out to be)

It was that moment when you realize as a parent that your kid can really do more than you expected. And while it frightens you, while you kinda want to take that moment back with all haste, you realize, “wow–he can DO this.”

(remember that story.  There’s a point coming.)

I’m preparing for an IEP. An IEP that is gonna be a big change.  An IEP I apparently always wanted, that yet completely terrifies me.

Next Friday we discuss placing Benji in a full inclusion mainstream kindergarten.  And it’s got me in such as state that I may run out of Xanax before the week is over.

First off, of course, is the pure shock that we have gotten to this point so quickly. I really wasn’t expecting it yet.  When Benji was first diagnosed as having a speech problem (pre-autism) we were told that the prognosis may be that  with lots of work, he might enter kindergarten with his typical peers in a general ed classroom.  And I clung to that idea like a fucking life-preserver in the middle of the pacific.

And let me be clear–it wasn’t that I wanted him to be typical, or “normal”, because that shit really didn’t–and still doesn’t–matter to me.  But I was so fearful of the stigma that would be placed upon him, the judgement of others, the battle he would have to face on a daily basis for the rest of his life if he wasn’t able to “catch up”  I can still remember with stunning clarity the moment I allowed myself to face the fear of what Autism meant–and the first thing I thought was “My baby!  They are going to be SO MEAN.”

But when the A-word was mentioned, and the subsequent evals and forms and evaluation forms, and forms evaluating the evaluations, and so on and so forth,  by the end of the diagnosis, I was numb and broken.  I put aside that life preserver and put my head underwater for a while.  I figured it was just something positive those early therapists were trying to say, because they could FEEL the ugly cry just below the surface.  And yeah, I wallowed in that for a bit.  Or a month.  Or something.

But like many parents in my situation, eventually, I snapped out of it.  And I embraced the programs in which my son was involved, and saw improvement–MARKED improvement–and I made sure he got every gods-damned service he could get by right, so that I could help him grow and become the amazing kid I already knew he was.

And I forgot about mainstreaming and inclusion.  Because it didn’t matter anymore.  I knew what my job was as advocate: not to change him, but to help OTHERS understand how “Au-some” he was.

Well, ok, and help him learn a different response to his frustrations rather than screaming.  But that goes without saying, no?

We entered Kindergarten this year, and it’s been…an experience.  He has some super sweet and wonderful classmates, and I’ve met a great group of Autism moms.  But the class just isn’t a fit.  Because it turns out it isn’t the High Functioning class I was told it was.  Nor is it on the general education track, which is where he should be according to the IEP.  So, as the school struggles to cover its out-of-compliant ASS, the powers that be observed my boy and declared him ready for all day mainstreaming.  Inclusion.  Right now.  In Kindergarten.

As previously predicted.

And, Ladies and Gentlemen, I am scared shitless.

Because those fears I had–about the stigma and battles and judgement?  Just came to the forefront.

We were insulated in special day.  Sure, the class itself might be shorted or judged, but there was a nobility in the class standing together in the face of that judgement, you know?  It was always an issue of “you just don’t KNOW these kids” when one came face to face with ignorant statements and judginess.  There is a camaraderie among parents of that class–who do not look upon your kid with a frowny chin-waggle if he chooses to simply stand there and flap with joy.  They understand your struggles, without explanation, and offer comfort or congratulations for every milestone met.  There is a solidarity, if you will, and you can always imagine yourselves “us vs them” if you have to.

But now, we lose the “us.”

And there is still the “them.”

Sure.  I’m not being fair.  All the parents of typical kids aren’t the judgey assholes one runs across online, or even at the park.  Hell, the kids in the class Ben has been part-time mainstreamed to have been super loving and supportive of Ben–so much so that that general ed. teacher has never even seen Ben even close to his worst.  And that says a lot for the parents, right?

But he isn’t going to be mainstreamed at the school he’s currently attending.  Nope.  Back to the home school.  And when I say back, I really mean, in attendance for the first time.

And who’s to say I won’t cock punch the first parent who gives me the stink eye?

IMG_1569

what’s that? Can’t? Never heard of it!

(or worse yet, bust into a full ugly cry?)

Because what makes this so stressful is that it kinda puts us back at square one.  And all the trepidation and uncertainty, and down right intestine-twisting FEAR that I felt right after the diagnosis–it’s back, blowing cigarette smoke right in my face.  She sits there, blowing her smoke and reminding me of the stories I’ve heard first hand of teachers refusing flat out to work with IEPs, supports getting cut due to budget constraints or administrative idiocy, and students–like my own son–falling by the wayside in favor of typical kids with vocal parents and a teacher with only so much energy to give.

Mainstreaming is the right decision.  My kid is practically reading at the 1st grade level already.  He knows how to get in line and sit for circle time and hell, today he demonstrated a math problem he made himself using graham crackers.  He’s eating up knowledge like an unattended plate full of chocolate covered peeps.  And while I have very little confidence in the team I’ve worked with so far, I KNOW they are not the enemy here.  Because there is no enemy.  Only that nicotine soaked bitch known as my fear.

So, once again, I have to kick her to the curb, and advocate and make sure he is placed in the best situation possible, where he can continue to blossom and grow.  I have to put aside my need for solidarity.  I have to put aside the things that made ME comfortable, and stare fear straight in the kisser and tell it to fuck off.

And all by next Friday.

Because the thing is?  He CAN climb that wall.  Without fear or hesitation.  And slide down the slide and do it again.  And I love him to pieces for that, and for reminding me that he can always do more than my fear would lead me to believe.

Categories: Autism, parenting, Snark | 5 Comments

What I Wore Wednesday

sometimes, the truth must out.

 

I’m joining my girl Lexi over at Mostly True Stuff (you haven’t read it?  you really should.  go do it now.  NOW.  I’ll wait.  *files nails*  Oh, you’re back?  speedreader, huh?  she’s awesome, right?)  for the what i wore wednesday.

 

I’ve noticed this trend of posting what you wear–and for those people with the cute clothes, and jobs taking them OUTSIDE into the REAL WORLD, y’all look super cute.  What with your hair did, and those eyelashes and the tres chic get-ups!

Alas–THIS *pointing to the cute people* is NOT my Wednesday.

The only reason i am semi put together at all is because i have to drop off my kid at school, and, well, the girls MUST be contained before stepping out in public.  Safety requirement, really. 

So here i am on this glorious Wednesday:

What-i-Wore-Wednesday

Feel like sharing your get-up?  HEad on over here and join the linky!

Categories: parenting, Snark | 2 Comments

Flashback Friday: Haircuts

He’ll sit for them now–but we are only 2 years removed from the nightmare that was getting a professional haircut.  Here’s a little reminder of what it was like to visit, as Ben calls it, “the haircut house”

Aug 6, 2010

So, my boy inherited a thick, beautiful head of hair. Thick like mine is (when it’s short), blonde (like mine was in my youth–ah sweet youth!) and coarse. (I don’t know who the hell gave him that one–both mr. mommy and I have soft fine hair, as do his grandmothers. I swear–his hair feels asian!) He also inherited my cowlick(s) which can be quite comedic as his hair gets longer. Lately, it was starting to get “moppy”, and ever efficient mommy that I am, I declared it was time for a haircut.

Moppy

He’s had 4 so far. Or maybe 5. Let’s just say it ain’t a regular thing. First–his hair doesn’t grow that fast, and second, like most toddlers, he hates having his haircut. Hates. I’m using the word hate here to describe a haircut. Hate.

I try to take him to my hairdresser, who will cut his hair for a reasonable fee. And while he gets a fabulous haircut–it is physically and mentally exhausting for all of us when we are done. She has a specific haircutting area–he never wants to stay in it. I never bring the right toy. He won’t sit in a barber’s chair for nothing. He WILL NOT wear that noisy cape. And he doesn’t, not anyone, no way, forget it lady and your sharp scissors, want ANYONE touching his HAIR.

None of this surprises me. He rarely lets me comb it either (thus the comedic cowlicks). I’m not even convinced he likes me washing it. (but he tolerates it because he LOVES the rinsing part) He doesn’t like us to dry his hair with a towel. He used to like the blowdryer, but that lasted all of a week. When it comes to this boys hair–HANDS OFF!

So, since the three times we’ve had Tonia cut his hair were so exhausting, I tried one of those “kid” places. The one I tried a while back sported a particular floating object–yellow in color. It was the only time Ben sat in a chair–and got the crappiest haircut I’ve ever seen. Nothing to thin out the thickness, or address the cowlicks. I had to spend more time on his hair after that cut than any other he’s had.

So my thought this last week was this–he sat in the chair at the crappy haircut place…maybe he will again at a different haircut place. Maybe the stimuli in these places will be enough to engage him briefly enough to let a professional get in there and cut.

So I packed snacks and his favorite DVD into my purse and we headed off to Woodland hills to a “kid friendly” and even “Autism friendly” salon.

WE get there and the place is LOUD. Benji is interested in the toys, not the chair. Strike one. The DVD players advertised online are not working and may have never worked. So the DVD I spent 15 minutes looking for that morning is useless. He is more interested in the train table. OK, she says, I’ll cut while he plays. And I think–yeah! That’s how we have to do it. I try to keep him in one place and she gets in there, cutting here, snipping there, thinning, thinning. And I think, this is going to work. IT really is. It’s going to work.

“All done hands”

This was my son’s way of saying, quit it lady! Oh dear. Only half of his head is cut at this point, so it’s not like I can say, oh, just trim a little bit more and we’re good to go. No. We’re committed to a cut now, and it has to continue.

So now begins the chase. He wants to play on the airhockey(!) table. I corral him back to the haircut area. A few more snips. More running away, more herding, more snips. Now, I called this place because they advertised an autism friendly haircut–meaning it would not be rushed. Guess what. Her next appt. showed up and here we were, trying to finish this cut because the other mom had a snooty look on her face.

Then came the clippers.

Yeah–we’d had that discussion. I told her he doesn’t like them. But to finish his cut (yes–we had gotten to that point, phew!) she had to either take clippers to the side, or snip with the sharp scissors, which required stillness. So I grab him, put him on my lap, hold his arms down and she gets one side done. With the clippers. The other side was well nigh impossible. So I told her to leave it with a few pieces I knew I could trim at home once he calmed down, paid the lady and high tailed it out of there. Once we were in the car, we were both able to take a breath and enjoy a moment of silence. That’s before Ben began his mantra of “go through tunnel”–which is kind-of this phrase which could mean:

a) literally drive me through a tunnel
b) I want to go
c) I’m hungry
d) you’re the worst mommy in the world, and I curse the day you ever brought me to this wretched salon with all its stimuli and smells and you let that lady touch my hair and to top it off you wouldn’t even let me play airhockey! I’m calling child protective services as soon as we get home!

D is variable, by the way, usually in reference to whatever messed-up activity I just had him participate in.

So after we get home, alcohol is consumed and naps are handed out, I google “haircutting + toddlers+autism” Even without the “autism” search, the answer is a resounding “DO IT YOURSELF, DUMBASS!” which is what my gut told me about a year ago. I kinda knew with that last visit to Tonia that I should just learn to cut it myself and be done with this stress! But, as stated in previous posts, I don’t always listen to my gut. I kept getting convinced that he needed a pro to cut his hair. And that was because I wanted it short. I mean short short. Practically high and tight. And he is cute as hell with short hair. But you know what, he’s also cute as hell with the mop–a little cuter, maybe. And with a pair of scissors and a DAY (or 3)to cut his hair, I can probably keep it at a moppy exisitence until he is old enough to a) sit still and b) not scream in bloody terror at anyone wielding scissors. Luckily though, this week’s cut is pretty short. So I’ve got a good 6 months before I have to even make a snip…

His most recent cut 2012. Watch out GQ!

Categories: Autism, parenting, Sensory issues | 5 Comments

Perfuckt Parunting

I’ve realized something. I’m doing it all wrong.

All this time I’ve been thinking that I can call upon my internal reserves, my college education, my moral compass and an insane amount of pragmatism to guide my own parenting, and I’m JUST. PLAIN. WRONG.

the moral equivalency of my parenting…

Because, throughout this journey, I’ve been crazy and focusing on my child and letting him grow, instead of controlling every aspect of his life, watching every word I say and putting my own sanity at risk! How foolish of me!

And the fact that he has Autism? WELL! I am most CERTAINLY doing it wrong. Just ask all the experts. Go ahead. I’ll wait.

*whistles badly* (I never was a good whistler. Something else I should be working on)

See? THEY know so much better than I do. I mean, why isn’t my son already mainstreamed? Why won’t he eat kale and drink Kumbacha? Why isn’t he speaking Chinese fluently? And there is NO WAY he’s going to get into the Olympic trials for the 2024 Olympics here in Los Angeles, for which I should be petitioning the IOC with every spare moment I have.

If I am ever to see that elusive unicorn, puking sunshine and rainbows, I really need to change my tactics. I’ve obviously done irreparable damage so far that only YEARS and YEARS of therapy MIGHT be able to reverse, but I can start new from right now. I’ve developed this simple plan to turn me into the perfect parent, based on all my Internet readings, gleaned mostly from Facebook, blogs and parenting magazines.

First: Language.

I must be positive and loving in all things uttered from my mouth. I must never say anything about my own feelings or weaknesses aloud, and indeed punish myself if I ever DARE to think them, as anything negative from me can only be construed as abusive. The Plan: From this day forward I will not speak or write or express myself in any fashion. I will assume, and rightly so, that those around me know far better what needs to be done. Our house will only contain the noise of my son, scripting away and screaming in frustration while I maintain a placid countenance. In a lovely apron and freshly coifed hair.

I bet she doesn’t let her kid skip piano lessons!!

Second: Scheduling.

My son does not have enough of a structured day. I will plan every minute, and enroll him in 5 or more activities in order to a) extend his education to counter the meaningless public school education that is no doubt damaging his precious psyche and really getting in the way of his full grasp of Latin and the classics and b) give him the parenting role models he so desperately needs since I am obviously still a disappointment since I can’t even muster the energy to homeschool him. These activities, on top of various therapies–approved only by a knowing panel of blogging parents, advocates and celebrities–will foster mental, physical and spiritual growth. I can’t even BEGIN to tell you how I’ve failed him spiritually with my silly pagan beliefs and simple focus on the golden rule. How naive of me to think that without Christianity in his back pocket, that I would just be setting him up for failure.

Third: Diet.

Why I am even allowed in the kitchen is beyond me. Why, I don’t even have my own sourdough starter! It is simply not enough to make homemade meals and menu plan, and have fresh fruit available and a freezer full of meat. NO NO NO. I am not NEARLY vigilant enough about how far my produce has traveled, and the amount of grass eaten, or precisely how many vitamins and minerals my child ingests daily. I don’t even check the GMO status of all produce in a 5 mile radius, and I DEIGN to call myself a mother? In fact *hanging my head in shame* I give him…Gummy Vitamins. (gasp) A travesty, I know. So from now on I will keep a detailed feeding log of every item my son ingests, with a breakdown of all the appropriate nutrients of each. I will buy ONLY from farmer’s markets, where I can speak to the farmer DIRECTLY and make sure each nectarine and leaf of kale was hand picked by fresh faced virgins in the morning dew. OTherwise, i could be responsible for the downfall of our society as we know it.

his mom TOTALLY made him eat his vegetables!

And, as for my child’s picky eating and limited diet? I can really only blame myself. I mean–and the evidence is clearly out there in the bloggy world–if I would just provide a great variety of healthy foods, he wouldn’t be eating dried fruit and peanut butter sandwiches with homemade jam. NO NO NO. I obviously did not start him on healthy foods, instead allowing him to eat foods he likes like homemade pumpkin soups, which was sadly his favorite food at 12 months. No, I should have put him in front of a plate of steamed kale and not let him eat another thing until he ingested every bite. It’s really my weakness at fault here. If ONLY I could have been a better mother and fed him vegetables when he started out–carrots, green beans and peas not counting, of course. AS if they were legitimate vegetables!

Fourth: Medical.

I can really only blame myself. The vaccines. All those diseases injected into my little boy in order to protect others from getting ill. How selfish of me. How abusive. How naive of me to think that the government is trying to protect those with weak immune systems and newborns by stamping out preventable diseases that kill people. Am I not AWARE of how big pharma runs EVERYTHING in this country? Well, perhaps if I were a better parent, I would have read some of the very insightful blogs about vaccine damage and how I am entirely to blame for damaging my child and causing his autism. I mean, how could I POSSIBLY wrap my feeble brain around the fact that he never reacted to those vaccines and never had any serious regressions after the MMR vaccine or other deadly suspects? Perhaps if I had read more, and not eaten Tuna when I was pregnant, my son would be whole and perfect like those other bloggers’ kids. Shame on me, really. My lack of research and preparation should have disqualified me from ever having children, you’re quite right. Let this be a lesson to new parents–please read each and every blog you can before conception, so as not to make the fatal mistakes I have in my ignorance.

someday…SOME DAY…

Fifth: Personal Growth.

I am an imperfect human. *sob* A spider hanging over a flame, without any faith in the hand that holds me: the mommy bloggers and parent magazines. I don’t know why I am so contentious. To think that I could come to any parenting decisions BY MYSELF? Preposterous. I should have more faith in the thousands of women before me, and ALL the celebrities with an opinion on anything parental, post-natal and “having it all” oriented. This has always been a struggle of mine–doing enough. I mean, working through college, two bachelor’s degrees, teaching in South Los Angeles–I may as well have put my feet up and sipped piña coladas. But now that I have accepted the gauntlet of SAHM, I must challenge myself beyond keeping a clean home, happy husband and loved child. NO. I must perfect my brainwaves so that all I can think is perfection–because once I do so, I can be the parent my child needs me to be, and join the elusive passive-aggressive-circle-jerk group of perfect mommy bloggers. I can only hope of gaining just a small percentage of the knowledge and wisdom they have attained. I have to do MORE than try–I cannot waiver even for a second, or else it will all be a failure.

These are the goals I must set for myself–besides beauty and thinness of course (those go without saying, right?)–that will allow me to make this world a better place and create a child that will no doubt cure cancer and destroy asteroids with the power of his mind (who needs Bruce Willis with this kid around?) Because until I attain these goals, I am just a shell of a human being, and frankly, unworthy of the title “mommy”.

Categories: Autism, parenting, Snark | 17 Comments

Under Pressure

Sometimes we have to be reminded that our kids are not us.  I mean, sure, my child is adorable & funny–which he CLEARLY gets from me, amiright?–but I think that may be where the similarity ends.

FACT:  I work well under pressure.  Give me a deadline and a few hours to create something and BAM!  done!  YES!  SUCK IT TIME!  Some of my best writing has been under the “this has to be submitted tomorrow” time crunch.

I GOT THIS!

It focuses me, pressure does.  It blocks out the shiny nonsense and squirrels that generally hinder me and puts me straight on my path.  In plays, I would be useless up until the final week.  Then every line was etched into my brain, every mark every cue.  ETCHED.  When working on my senior thesis–given the WHOLE SEMESTER, most of my best work?  done the night before each portion was due (there were several deadlines, to that helped)

I may have preached to my students the importance of pre-planning and preparation, but I was a hypocrite.  How many kick-ass lessons did I prepare in the wee mornings before the stumbled into my room?

Now, that isn’t to say deadlines don’t give me anxiety.  But mostly it’s an anxiety that I will not finish in time, or that my work will be sub par.  A normal anxiety, really.  No Xanax needed.

But all this I’ve described here?  Not my son.

Oh–he may show signs of this later on, but right now, for this lesson, THIS is not my son.

POTTY TRAINING.

So, we’ve been potty training for a few years now.  And I use the term loosely, because its been more of a “how to sit on the potty and then put on a pull-up” training.  Its been an ABA goal for a year.  He does everything for potty training–EXCEPT ELIMINATE.

Now–before you “have you tried…?” me, the answer is yes.  100x YES.  underwear weekend?  check.  a million gallons of fluids and following him around with a potty chair?  check.  prizes, prizes and more prizes–check, check and FUCKING CHECK.  Where do you think these extra pounds came from?  those Reeses cups aint’ gonna eat themselves.  Naked–check.  new underwear–check.  EVERY. THING.  Sometimes a new method would give us a small victory, only to go back to drawing board the next minute.

And as much as I would LOVE to be past all this(with the white hot intensity of a thousand suns), I’ve given up being all horked up about it and am letting him do this in his time–with a good push from time to time (can someone say naked summer pool time?)

Anxiety level 100

Because here’s what I have discovered:  All this pressure?  TOTALLY giving him anxiety.  And I don’t mean he’s a little nervous.  I mean ear flapping (he smacks his ears and then covers them) head shaking, crying screaming anxiety.  I have seen him try.  Hell, he’s gotten out of bed to tell me he wants to try, only to sit down and nothing happens, and he looks at me so forlorn, so upset, telling me that “it’s not working” and then bursting into heartbreaking tears.  Because I have offered some awesome treats.  and he really wants them.  But he gets so worked up…

Well, he gets so worked up that when he fails, its traumatizing.  I’m not exaggerating here.  We’ve had days when I have to retrain him to simply go BACK into the the bathroom because he jumps into a screaming meltdown if I even suggest the potty.  And then he wants NOTHING to do with potty training whatsoever.  NOTHING.

And back to square one.

So, we (his therapist and I) have come to the conclusion that the pressure, the hype, the ramp-up–ALL OF IT is creating this anxiety train that is getting in the way of actual progress.  Lucky for me–his therapist is the same way–she cannot TAKE the pressure of something, but does extraordinarily well when simply left alone–she is NOT a cram-for-the-exam-the-night-before kind of gal.

So now I am back to baby steps.  Yesterday he wore his new Spiderman underwear for 30 minutes.  Today I am hoping for a little longer, but I am ok if it’s not.  I have learned how to use reinforcers to guide him, not pressure him. (I.e. he couldn’t get on the computer yesterday until he at least put on the underwear, then I let HIM dictate when that happened)

This may seem silly to those who have successfully potty trained their kid, neurotypical or non.  But I know I’m not alone in this.  There are plenty of us with kids on the spectrum (and not) who have kids much older than old frowny faces would tell you they should be trained.  Because it isn’t about this method or that–but how your kid works.  I was coming at Ben like *I* would solve the problem, and clearly that was wrong.

The pressure isn’t on him–its on me.  Well then–this should be a piece of cake then.  Let the focus begin…

Categories: Autism, parenting | 9 Comments

A Fine Line

You guys, I’m in a quandary.

I was at the park yesterday with the squirt, letting him blow off some steam.  We went early-ish in the day so there really wasn’t anyone there except for a few nannies, making sure their charges were getting some sunshine while they chatted away in various languages on their cell phones.

I kinda prefer it this way.  And Ben could care.  As long as he gets pushed on the swings long enough, and I don’t hinder his new found climbing skills, to the detriment of my blood pressure, he’s good.

And frankly, I don’t like dealing with other parents.

Now, you may be thinking, “Oh you misanthrope!”  and you’d be right, but that isn’t why I don’t want to deal with them.  Socially, I appear fairly inapproachable, so I don’t get too many “mommy chats” that make me want to pour bleach in my ears.  No, I don’t like dealing with them because I don’t know the rules anymore.

my son’s idea of a good time…

Look–I have a boy.  A boy who craves sensory input.  A boy who is JUST beginning to understand the concept of ownership.  Who cannot understand what other kids say to him most of the time, and can’t read a social cue for nothing.

Now, he’s not some Tasmanian devil trolling the playstructure with destruction.  He’s a happy kid, smiling, scripting his own strange language, smiling, wanting to join in, smiling and running around.  He loves the slide.  The higher the better.  And he loves, LOVES, when kids wanna pile on one another in some sort of game that only kids understand.

If a kid chases him, run near him, or within 5 feet of him, IT’S ON.  If two kids are squishing against one another in a 10-foot radius, he will find them and join in.  And generally, giggles ensue.

But sometimes he engages first, for whatever reason. Because he doesn’t understand that not all kids love a good squish.  And THAT I cannot explain in words that he understands.  I’ve tried–GODDESS KNOWS–but he just looks at me all cockeyed.

But even that isn’t what confuses me.

Here’s the story.  Yesterday, my kid was wanting to go down a slide.  And there was a little girl in front of him, younger, waiting at the top of the slide.  A tall slide too–a big kid slide. and her mom was on the sidelines, checking her FB status.  I don’t judge.  My phone was in my hand too.  Off–but in my hand.  Anyway, the little girl was waiting at the top FOREVER, and seemed to be smiling and giggling with Ben, right behind her.  I reminded Ben to wait his turn, then she went down the slide and he quickly followed.  Then they ran back up the structure to do it again.  And she waited at the top, with Ben right behind her.  And waited.  And waited.  And waited.  Now, I couldn’t see their legs, but I have to assume that Ben gave her a leg shove to move her down the slide.  and she came down the slide, physically unharmed, but crying, into her mother’s arms. (we both rushed over about the same time, so props to her for multitasking with the phone and parenting)  I grab Ben and apologize to the mother and gently admonish Ben for not being gentle with a little one–which is my rule.

The daggers that came from the mother to me for the remainder of this park adventure could have put ginsu to shame.

And I thought–when did we become such pansies?

my little Ferdinand…

Look–I am a helicopter mom.  I know it.  My kid has a tendency to lash out or do things that are inappropriate for which I try to run interference.  But he’s also a kid.  A boy, even.  There is a great deal of shenanigans to be done in his lifetime, that I will try my best to not hinder.  I’m just trying to keep him from inadvertently beating anyone up in the process.  Look–he’s strong, with some weight behind him.  He could decimate someone.  Not that he wants to, but he could.

And even calling myself a helicopter mom, I don’t hover NEARLY as much as others.  And I don’t judge–well, sorta, but only in my head as I am obviously in no place to really say anything.

And not wanting to sound like an old geezer–but when we were little, my mom wasn’t even AT the park with me (granted it was our backyard–but still).  There was no hover.  There was playground justice.  Big kids looked after little kids.  Little kids ate sand.  Bullying happened. Wrestling  and grab-ass occurred.  Monkey bars were licked.  Cuts and scrapes were acquired.  Friendships were made.  I’m in no way saying it was perfect or bucolic, but it was different.  And we were tougher for it.

Now, I’ve been annoyed with other kids and their parents at the park, here and here.  But I’ve also seen kids pile on Benji in ways that he liked and didn’t like.  If he didn’t, he usually comes running to me, and I tell him to avoid those kids.  Because that’s how that works, right?  Am I supposed to sit there in indignant anger?  Am I doing this wrong?

Eventually we had to leave because the local day-camp released the inmates, and the noise was a bit much for my boy.  But that lady didn’t quit glaring at me until I was out of eyesight.  really.

This.  This is the reason I dislike the park so. Because obviously a memo went out on how to hinder kids from playing, and I missed it.

Categories: Autism, parenting, Snark | 12 Comments

The happiest place on earth?

So yesterday the squirt and I went to Disneyland.  We (the Old Man and I) decided to spend the $$ to get season passes two years ago, and it pays for itself every time. I think we figured if we go at least 4 times, the passes pay for themselves, so I try to go 5-6x a year, because we all know I love a bargain.  The Old Man doesn’t always get to go–we only have passes for me and Ben, because Disney is all agro and the passes are person-specific–and park-hopper tix are (last time I checked) $119.  Really.  I think I heard/read something last week that said if the price of Disney tix increased in the last ten years via inflation alone, it would only cost $28 to get in.

But THAT is a different blog post for another time.  And also the primary reason I RARELY buy anything, other than churros or the occasional corn dog at the park.

Anyway, I wanted to take the squirt as a celebration of completing pre-school, and as one last ditch effort before we are blocked out for the summer. (our passes are good–they’re not THAT good) although honestly–Disneyland in 100degree heat in august?  NO THANK YOU.  I actually prefer the fall and winter trips to Disney myself.

Also–Cars Land just opened up.  (I mean JUST as in last week) and as my son is fluent in Mater and Lightening McQueen, it was a necessary adventure.

My plan was to go STUPID early to get to Carsland before it was stupid crowded.

somehow that memo got leaked.

But that’s ok.  we have the Guest Assistance Pass(GAP), which allows us to use the handicapped entrances to avoided the sensory-laden crowded lines. The alternate entrances are not without their wait, but it usually isn’t as long, and certainly NOT as crowded.

So we head over to the main attraction of Cars Land–the racing ride–and present our pass to those who know.

And they hand-write a fast pass.

THIS. IS. NEW.

Now–I am not complaining about this process.  It’s only fair.  I often feel a little guilty that we get to stroll onto the major rides with what is essential an automatic fast pass (Lord knows I’ve fielded enough looks with people who agree with that).  That said, my child also almost NEVER gets to meet characters because he simply cannot handle the lines/crowds(and he’s at an age where he kinda wants to), I don’t use the pass if the line is short enough (about two cycles of waiting) and we rarely go on any of the “grown-up rides.  so it evens out.

But USUALLY, we just get in line and wait the fast-pass wait. So, we were not expecting this.

Now–Autie parents will get me here.  I was 3 seconds away from a melt-down.  a BIG one.  I had shown him the online gallery of the rides, we had discussed that he wanted this ride.  He was fussing the entire time we were renewing our GAP because he wanted the “Lightening McQueen ride!” and now I had to turn to him, tell him to get back in the stroller because we had to come back in 2.5 hours.

all I’m sayin–a head’s up would have been nice.

IMG_20120620_085910

You can see the Luigi ride in the background. Anxiety still etches his face, though…

As his eyes began to swim around madly and his face began to crumple, I quickly rushed him over to the Luigi floating tire ride, where we got on almost instantly, and the moment was saved by giant beach balls.

but for the next two hours I had to field “Lightning McQueen ride?” questions and tears.  trying to explain to a child who has NO CONCEPT of time, that it wasn’t our turn yet.  and I had no kind of visual timer that would ease that anxiety.

so we went on Mater’s ride, and over to the Pier for the Toy Story ride (one of his favorite–if not THE favorite), the little mermaid nap, almost everything over at a Bug’s Life (which he usually enjoys with great fervor), all the while: “Lightning McQueen?”

we finally had @ 40 minutes left, so I took us over to Soarin’ Over California–a ride he LURVES–which had a bit of an un-fastpass wait in the fast pass line, but we toughed it out.  He calls it the “airplane ride” and generally it induces giggles and squeals and cries of delight.

Except this time.

TEARS and screams of terror.

For the unknowing, it is a simulator ride with a large parabolic screen that simulates a helicopter/hang glider ride over certain parts of California.  I love it, as it shows some of my favorite areas–including Redwood Creek!  Anyway, we rise up, we float over the Golden Gate, we’re speeding over Redwood Creek, and then we at Mammoth or Big Bear and come up over the mountain to soar down the other side…

and he is scared out of his wits.

I try to comfort etc, but NOTHING will soothe.  a scene over the ocean helps, but then we’re in Napa and the screaming starts again.  I cover his eyes and tell him not to look and he plays a kind of hide-and-seek with my hand, which ceases the screams but not his trembling.  at the end he is just crying inconsolably and I have to hold him for a moment before we can exit.  But the promise that our next ride is “Lightning McQueen” gets his little butt in motion.

so we hustle back over to Cars Land to stand in what may be the longest fast-pass line EVER, and he is quiet and subdued.  I’m not fussin at him, letting him process, and frankly it was hot.

we FINALLY get on the ride, he’s excited about our car, he laughs at certain parts, jumps at others (Frank IS a little scary) but he likes the talking cars.

See those happy people? NOT. US.

then comes the race.  apparently there is a race.  a fast race.

cue screams of terror.

it is called “Radiator Springs Racers” after all.

Now–before you judgey-McJudgerson me for taking a kid on fast ride, this kids spends HOURS watching roller coaster videos.  He asks to go on them all the time at places like the fair and whatnot.  As far as “roller coaster” this was mild.  It wasn’t Thunder mountain.  it was, for most folks, a fun little race.

But luckily, since it was a race, it was over quickly.

And as we wait to get off the ride–you know, sitting in limbo, edging closer, he is crying and trembling and I am consoling and comforting.  And everytime the car lurches forward, he screams again.

and the twit sitting next to me laughed.

My medal for not smacking her?  you can mail it today.

we finally get to the end, and we struggle to get out of the car because he is just a mess.  I may or may not have tried to trip the eejit who sat next to me.  sue me.

we get out, I search for my stroller, because they have people who constantly shuffle them, get him seated with a juice box and some apple chips and we go sit somewhere NOT crowded and QUIET(ish).

Mommy:  Did you like that ride?

Ben: yeah

Mommy: but you were crying and screaming

Ben: *nods his head* Benji cries.

Mommy:  did it scare you?

Ben:  it was too fast

Mommy:  do you wanna go on it again sometime?

Ben: *thinks about it* yes.

*FACEPALM*

458892_3813528470808_985003744_o

My sunburn, care of Neutrogena Sunblock stick–that obviously missed a few spots…

The rest of the day was the usual.  we hied over to Disneyland and went on the usual rides with little incident.  At the end of the day, foot sore and sunburned, we took one last trip on the Disneyland railroad and headed home.

I am glad the summer block out is soon upon us.

Categories: Autism, parenting | 8 Comments
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